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Blood Lead Screening and Case Management for Lead Poisoned Children

Another Link in the Chain: State Policies and Practices for Case Management and Environmental Investigation of Lead-Poisoned Children (June 1999) - This report presents information on state policies for case management and environmental investigation, including: what services are provided; who is providing these services; how the services are being paid for; and the availability of evaluation data. This "baseline" information has never been collected and assembled in a comprehensive fashion on a state-by-state basis or analyzed at the national level. This report is intended to document state policies to help sharpen discussion and decision-making at many levels. (Available from the National Center for Healthy Housing at www.centerforhealthyhousing.org/Another_Link_in_Chain.pdf [PDF].)

Another Link in the Chain: State Policies and Practices for Case Management and Environmental Investigation of Lead-Poisoned Children - Update (November 2001) [PDF] - This version documents changes since 1998 in policies and practices for case management and environmental investigation for lead poisoned children and explores the impact of this report on precipitating change.

The Community Tool Kit: An Advocate's Tool for Improving Lead Screening in Your Community (November 2002) - This toolkit is designed to serve as a resource for making decisions about targeted lead screening at the community level.

The Foundations of Better Lead Screening for Children in Medicaid (April 2001) - This report showcases strategies from five states where intense effort has gone into improving lead screening among the high-risk population of children who are Medicaid beneficiaries. The report’s practical how-to information is of immediate importance to administrators and staff of state Medicaid agencies and state and local health departments, as well as to advocates and policy makers. Among the various topics covered are: combining lead screening data with Medicaid data; state policies that support screening and follow-up care; and using maps to simplify complex information on screening.

Lead Screening for Children in the Medicaid Program: A Tool Kit (June 2001) - Contains various resources on lead screening policy for children served by the Medicaid program, including a set of fact sheets (PDF) on blood lead screening and case management, health risks from lead exposure, and tips for preventing lead exposure.

Stuck in Neutral: States Neglect Lead Testing Duty to Children Served by Medicaid (August 2005) - Illustrates a 2005 analysis of state data on lead screening services provided to children eligible for Medicaid, who are legally entitled to lead tests and who are considered at high risk for lead poisoning as a group. The report examines data gathered from forms submitted annually by state Medicaid agencies to the Centers for Medicare and Medicaid Services (CMS) at the Department of Health and Humans Services.

Track, Monitor, and Respond: Three Keys to Better Lead Screening for Children in Medicaid (September 2001) [PDF] - Highlights promising strategies for carrying out the policy of the Centers for Medicare and Medicaid Services (CMS) on lead screening and follow-up care for young Medicaid beneficiaries. This document will be useful to staff of state Medicaid agencies and health departments and others who work closely with health care providers and managed care plans to develop and monitor performance specifications. This document is divided into three sections designed to build upon each other: the tracking section contains recommendations on collecting essential information on lead screening in the Medicaid population; the Monitoring section has suggestions on strategies for utilizing this information; and the Responding section is a case-study of a visible and effective response to health care providers that is based on tracking and performance monitoring.

Building Blocks for Primary Prevention

Building Blocks for Primary Prevention: Protecting Children from Lead-Based Paint Hazards (October 2005) - Identifies and assembles a comprehensive collection of strategies that merit consideration by state and local governments and others in position to reduce lead hazards in housing and thereby help meet the Healthy People 2010 goal of eliminating childhood lead poisoning. In contrast to case studies that comprehensively analyze a single program, this project scanned the landscape to identify and describe innovative and promising strategies at the “building block” level. Building Blocks produced concise summaries of individual strategies from which cities and states can select based on their needs and political and economic realities.

Data-Sharing and Lead Poisoning Prevention

Overcoming Barriers to Data-Sharing Related to the HIPAA Privacy Rule (June 2004) [PDF] - Over the past few years, the health care system has devoted considerable attention to ensuring compliance with the Health Insurance Portability and Accountability Act of 1996 (HIPAA). A primary focus of HIPAA is improving the efficiency and effectiveness of health care systems by standardizing the electronic exchange of administrative and financial data. HIPAA also established new national standards for protecting the privacy of personal medical information. This paper reviews HIPAA requirements and exceptions, focusing on those for public health agencies, and describes permissible uses of lead-related data under the HIPAA Privacy Rule. Readers are cautioned that this paper reflects publicly available guidance but does not constitute legal advice.

Disparities of Lead Exposure Risks

Small Area Analysis of Risk for Childhood Lead Poisoning (May 2001) [PDF] - This report highlights new research that reveals tragic rates of lead poisoning in some neighborhoods in seven cities—Detroit, Philadelphia, Milwaukee, Mobile, Baltimore, Boston, and St. Louis. This study analyzed existing blood lead screening data collected by state and local health departments during 1998 (1999 data for St. Louis) and found that across the seven cities studied, more than 50 percent of the children with elevated blood lead levels lived in just 11.3 percent of ZIP codes. This research demonstrates the need to target increased resources to controlling lead-based paint hazards in highest-risk housing.

Effective Code Enforcement for Healthy Homes

Effective Practices for Enforcing Codes to Ensure Decent Housing Condition (updated August 2006) [PDF] - This report provides summaries of and citations for some of the nation’s most innovative state and local policies and programs that help speed enforcement and compliance for lead hazard control and other housing code enforcement orders related to dangerous and hazardous conditions. These strategies have been implemented in a variety of areas throughout the country and include well-designed enforcement measures, more efficient use of existing mechanisms and processes, partnerships, financial incentives for property owners served with lead hazard control and housing code enforcement orders, and more.

Model Disclosure Law (updated September 2003) [PDF] - This document is designed to guide state and local governments wishing to enact lead hazard disclosure laws. Though all states and localities are covered by the federal lead hazard disclosure rule, many smaller violations, though dangerous to children and families, go unenforced by HUD and EPA. State and local disclosure laws often allow for enforcement actions against these smaller violators, helping to inform more tenants and homebuyers of potentially dangerous conditions before anyone is poisoned.

Ten Effective Strategies for Preventing Childhood Lead Poisoning Through Code Enforcement (Revised April 2002) - This report briefly reviews the status of childhood lead poisoning and makes the case for incorporating lead safety explicitly into code enforcement. The report then outlines ten strategies for maximizing lead poisoning prevention through code enforcement, citing programs where work to incorporate these strategies is underway. (Also available here in PDF format.)

High-Risk Housing

Action Plan to Make High-Risk Housing Lead-Safe (July 2000) - This plan builds on our current understanding of childhood lead poisoning and experience in prevention to present innovative strategies for identifying and making high-risk housing lead-safe by the year 2010. This Action Plan also makes the case for focusing the necessary attention and resources on highest-risk housing by illustrating how lead safety is an essential first step in giving millions of children opportunities for good school performance now and good jobs and incomes later in their lives.

Analysis of the Housing Stock (October 1999) [PDF] - Defines and quantifies distressed and marginal housing, the segments of the US housing stock that pose the greatest risk for lead hazards. Provides a longitudinal view of the extent to which units are retired from use and/or undergo other change in their risk status, and analysis of the characteristics of this high-risk housing as well as the socioeconomic and neighborhood factors that influence economic and physical distress.

Innovative Strategies for Addressing Lead Hazards in Distressed and Marginal Housing: A Collection of Best Practices (Revised January 2001) - This Best Practices guide highlights innovative local models that can be adapted to meet the circumstances and needs of communities working to prevent lead poisoning in distressed and marginal neighborhoods. (Also available here in PDF format.)

Hurricane Recovery for Healthy Communities

Hurricane Aftermath—Health and Housing Fact Sheets (October 2005) - These fact sheets, created by the Alliance and the National Center for Healthy Housing (NCHH), were designed for residents returning to hurricane impact zones. The fact sheets are designed for ease of use by journalists, community-based organizations, property owners, emergency response personnel, and residents, and serve as a complement to recovery tips and recommendations from the U.S. Centers for Disease Control and Prevention and the U.S. Environmental Protection Agency.

Managing Hurricane Recovery for Healthy and Affordable Communities (November 2005) - This Guide is for organizations and agencies that are working with people affected by recent hurricanes—including community development corporations, tenant groups, and other advocates for decent and affordable housing; environmental organizations and environmental justice advocates; public interest lawyers; health advocates; health care and social services providers; other helping organizations; and civic watchdog groups—as well as for policy makers trying to ensure that recovery benefits everyone, not just a privileged few.

Rebuilding Water-Damaged Homes: A Manual for the Safe, Healthy, Green, and Low-cost Restoration of Housing (Updated September 2009) - This manual was developed through numerous workshops sponsored by the Alliance for organizations working to restore homes in the Gulf region following the 2005 hurricane season and is a practical guide for practitioners. It lays out, through easy-to-read instructions and clear illustrations, how to clear out, decontaminate, and restore flood-damaged homes in a safe, healthy and affordable manner. The manual emphasizes how to make homes better able to withstand high winds and water intrusion. Healthy homes expert Dennis Livingston is the illustrator and primary author of the manual.

“Reclaiming New Orleans’ Working-Class Communities," Chapter 8 in There Is No Such Thing as a Natural Disaster: Race, Class, and Hurricane Katrina (Routledge: 2006) [PDF] - This eighth chapter in the first comprehensive critical book on the impact of Hurricane Katrina on New Orleans argues that smart, safe, and healthy recovery and rebuilding is possible and necessary in the communities affected by the storm. The chapter discusses the conditions necessary for successful rebuilding, makes the case for citizen participation in all neighborhood and citywide planning, and looks at the rebuilding process as an opportunity for reducing race and class disparities. Four Alliance staff authored this chapter. Note: To order a copy of the entire book, click here.

Lead Hazard Control

Advancing Lead Safety through CDBG and HOME (November 2000) - This paper is intended for housing and community development agencies, community development corporations, and contractors doing paint repair and rehabilitation projects funded by the Community Development Block Grant (CDBG) and Home Investment Partnerships (HOME) programs. Its purpose is to explain recent shifts in approach to making housing lead-safe, identify opportunities for CDBG and HOME programs to protect children from lead poisoning, highlight important choices in work practices and planning considerations for properties undergoing rehab, and describe how to effectively utilize federal resources to carry out the requirements of HUD’s new lead-safety rule.

Blueprint for Building Capacity for Lead-Safe Painting and Remodeling (March 2001) - This document offers a practical vision for achieving lead safety by building the capacity of anyone conducting work that may disturb lead-based paint, including painters, remodelers, and rental property owners and managers. It outlines what is needed to achieve the widespread availability and adoption of training in lead-safe work practices that will build capacity for lead-safe painting and remodeling and offers five strategies to make training courses widely available at low or no cost.

Consolidated Plans and Lead-Safe Housing (July 2003) - This paper encourages advocates and other community leaders to use the Consolidated Plan, a federally mandated plan prepared by all states, cities, counties, and other jurisdictions that receive any funds from HUD’s CDBG, HOME, and Homeless Assistance programs, to ensure that lead hazards in housing receive the priority and attention they deserve. The ConPlan is a three-to five-year, long-range strategic plan to identify, prioritize, and address a jurisdiction’s housing and community development needs and to map the planned use of available housing and community development funds from all sources.

Emerging and Innovative Strategies for HUD's Lead Hazard Control Grants (April 2000) - This paper highlights innovative, prevention-based strategies to advance lead safety on a broad scale for consideration by cities applying for Lead Hazard Control grants and community-based partnering organizations. HUD solicits applicants for this grant program in the spring of each year.

Lead Dust Testing Practices by State Lead Poisoning Prevention Programs: A Summary of Survey Results (October 2003) [PDF] - This paper is a summary of an informal survery taken by the Alliance for Healthy Homes in July 2003 of selected state and local lead poisoning prevention programs about lead dust testing practices. The purpose of the survey was to determine the current extent to which lead dust testing is being utilized in lead poisoning prevention programs nationwide. The results show significantly broader use of dust testing and growing recognition of the importance of this tool, as well as significant room for further progress. The responses also prompt a number of questions that are worth further exploration.

Lead-Safe Housing Policy Guidance Series (December 2004) [PDFs] - The Alliance for Healthy Homes has created a four-part Lead-Safe Housing Policy Guidance Series to assist state and local policy makers and government agency staff in establishing a prevention-based framework to advance lead-safe housing. All documents linked from the Series page are in PDF format.

Making Lead-Safe Housing the Central Focus of Strategic Plans to Eliminate Childhood Lead Poisoning (March 2003) [PDF] - This paper is intended to guide programs preparing strategic plans as part of the requirements of CDC's Lead Poisoning Prevention Grants program. It offers several key recommendations aimed at protecting high-risk communities, building capacity for lead-safe work practices, expanding resources for prevention, and encouraging effective action by property owners.

Not Ready for Prime Time: Electronic Grant Application Submission Requirements during HUD’s FY 2005 SuperNOFA Process, as experienced by some Healthy Homes and Lead Hazard Control Applicants (September 2005) [PDF] - This report summarizes difficulties with HUD's FY 2005 electronic submission process for lead hazard control and healthy homes grant applicants. The report's findings were drawn from applicant responses to an Alliance survey conducted in July 2005.

Lead Safety Tips

Being a Lead-Safe Landlord - This document contains easy instructions for landlords to protect their tenants against exposure to lead-based paint hazards in rental properties.

Lead Safety Tips for Tenants - This document contains tips for tenants whose homes may contain lead-based paint hazards.

Lead-Safe Painting and Renovation - This guide contains easy-to-follow instructions for anyone conducting painting or remodeling projects in homes with lead-based paint.